{"id":12517,"date":"2024-06-26T14:59:36","date_gmt":"2024-06-26T18:59:36","guid":{"rendered":"https:\/\/www.christopherreeve.org\/?page_id=12517"},"modified":"2025-06-25T10:35:02","modified_gmt":"2025-06-25T14:35:02","slug":"resources-for-healthcare-professionals","status":"publish","type":"page","link":"https:\/\/www.christopherreeve.org\/todays-care\/get-support\/resources-for-healthcare-professionals\/","title":{"rendered":"Resources for Healthcare Professionals"},"content":{"rendered":"\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\"><section class=\" bg--light-grey\">\n    <div class=\"o-container \">\n\n<div class=\"o-grid \" id=\"\">\n\n    <div class=\"o-grid__col u-1\/2@md u-text-left o-grid__col--text\">\n        <p>Paralysis affects families in every community across the country. But finding local healthcare professionals with experience providing care to people living with paralysis can be a challenge.<\/p>\n<p>Defined simply, paralysis is the inability to move one or more of the four limbs. \u00a0Roughly 18,000 people are paralyzed every year due to traumatic spinal cord injuries (SCI), but paralysis is also caused by disease and congenital conditions such as stroke and spina bifida, and, less frequently, Guillain-Barre Syndrome and Transverse Myelitis.<\/p>\n    <\/div>\n\n    <div class=\"o-grid__col u-1\/2@md o-grid__col--image\">\n        <img decoding=\"async\" src=\"https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/11\/TelehealthHCP1050x920.png\" alt=\"\" class=\"image--square\">\n    <\/div>\n\n<\/div>\n\n\n<p><\/p>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"card card--text cursor \"  onclick=\"location.href='\/todays-care\/get-support\/resources-for-healthcare-professionals\/spinal-cord-injury-for-primary-care-physicians\/'\" >\n    <div class=\"card__content\">\n        <div class=\"card__header\">\n            <h3>Spinal Cord Injury for Primary Care Physicians (PCPs) and other Outpatient Physicians<\/h3>\n        <\/div>\n        <div class=\"card__copy\">\n            <p><p>Dr. Maissel, a physiatrist, describes the systems affected by SCI as well as some of the secondary conditions that patients with SCI are likely to experience.<\/p>\n<\/p>\n        <\/div>\n        <div class=\"card__cta\">\n                        <a class=\"btn--text--arrow\" href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/spinal-cord-injury-for-primary-care-physicians\/\">Read More<\/a>\n                \n        <\/div>\n    <\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"card card--text cursor \"  onclick=\"location.href='https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Healthcare-Professionals-Knowledge-Study-Final-123021.pdf'\" >\n    <div class=\"card__content\">\n        <div class=\"card__header\">\n            <h3>Healthcare Professional Knowledge Study<\/h3>\n        <\/div>\n        <div class=\"card__copy\">\n            <p><p>In 2021, the Reeve Foundation commissioned an independent national survey to gauge knowledge of paralysis across the medical field. <\/p>\n<\/p>\n        <\/div>\n        <div class=\"card__cta\">\n                        <a class=\"btn--text--arrow\" href=\"https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Healthcare-Professionals-Knowledge-Study-Final-123021.pdf\">Download the PDF<\/a>\n                \n        <\/div>\n    <\/div>\n<\/div><\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"card card--text cursor \"  onclick=\"location.href='https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Clinical-Practice-Guidelines-3-19-24-FINAL.pdf'\" >\n    <div class=\"card__content\">\n        <div class=\"card__header\">\n            <h3>Clinical Practice Guidelines for Paralysis<\/h3>\n        <\/div>\n        <div class=\"card__copy\">\n            <p><\/p>\n        <\/div>\n        <div class=\"card__cta\">\n                        <a class=\"btn--text--arrow\" href=\"https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Clinical-Practice-Guidelines-3-19-24-FINAL.pdf\">Download the PDF<\/a>\n                \n        <\/div>\n    <\/div>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<div class=\"card card--text cursor \"  onclick=\"location.href='https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Textbook-List-3-24.pdf'\" >\n    <div class=\"card__content\">\n        <div class=\"card__header\">\n            <h3>Paralysis-Related Textbooks for Health Care Professionals<\/h3>\n        <\/div>\n        <div class=\"card__copy\">\n            <p><\/p>\n        <\/div>\n        <div class=\"card__cta\">\n                        <a class=\"btn--text--arrow\" href=\"https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/Textbook-List-3-24.pdf\">Download the PDF<\/a>\n                \n        <\/div>\n    <\/div>\n<\/div><\/div>\n<\/div>\n\n\n<\/div>\n<\/section><\/div><\/div>\n\n\n<section class=\" white\">\n    <div class=\"o-container \">\n\n\n<h2 class=\"wp-block-heading\">Nurse Linda<\/h2>\n\n\n\n<p>Linda Schultz, Ph.D., CRRN, &#8220;Nurse Linda&#8221;, a rehabilitation nurse who works with the Reeve Foundation to educate families about paralysis, has written a series of seven blogs about pediatric spinal cord injury that can help providers treat younger patients.<\/p>\n\n\n<div class=\"o-grid o-ul__li o-ul__li--red \">\n\n    <div class=\"o-grid__col\">\n        <ul>\n            <li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/activity-based-therapy-in-pediatrics\/\">Activity-Based Therapy in Pediatrics<\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/diaphragmatic-pacing-in-pediatrics-professional-edition\/\">Diaphragmatic Pacing in Pediatrics<\/a><\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/energy-expenditure-in-pediatric-spinal-cord-injury\/\">Energy Expenditure in Pediatric SCI<\/a><\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/international-spinal-cord-injury-bowel-basic-data\/\">International Spinal Cord Injury Bowel Basic Data Set v.2.0<\/a><\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/musculoskeletal-issues-in-pediatrics-professional-edition\/\">Musculoskeletal Issues in Pediatrics<\/a><\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/pediatric-trunk-control-satco-instrument-professional-edition\/\">Pediatric Trunk Control: SATCo Instrument<\/a><\/li>\n<li><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/using-research-for-clinical-decision-making\/\">Using Research for Clinical Decision-Making<\/a><\/li>\n<\/ul>        <\/ul>\n    <\/div>\n\n<\/div>\n\n<\/div>\n<\/section>\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\"><section class=\" bg--light-grey\">\n    <div class=\"o-container \">\n\n\n<h2 class=\"wp-block-heading\"><strong>Emergency Medical Services and People with Paralysis<\/strong><\/h2>\n\n\n<div class=\"o-grid \" id=\"\">\n\n    <div class=\"o-grid__col u-1\/2@md u-text-left o-grid__col--text\">\n        <p>Nearly 5.4 people in the U.S live with paralysis, a physical disability that limits movement and function in part of the body. Symptoms vary widely from person to person: some individuals may be paralyzed from the waist down and able to move their upper body, while others may have high-level spinal cord injuries that require the use of a power wheelchair and a ventilator. <\/p>\n<p>Prehospital care plays a critical role in treating an array of medical emergencies. Emergency medical service (EMS) professionals can strengthen response and improve patient outcomes by better understanding the specific needs of people living with paralysis.<\/p>\n<p><a href=\"\/todays-care\/get-support\/resources-for-healthcare-professionals\/emergency-medical-services-and-people-with-paralysis\/\">Click here<\/a> for an overview of paralysis-related health conditions, transportation tips, and etiquette guidance.<\/p>\n    <\/div>\n\n    <div class=\"o-grid__col u-1\/2@md o-grid__col--image\">\n        <img decoding=\"async\" src=\"https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/09\/EMS1050x920.png\" alt=\"\" class=\"image--square\">\n    <\/div>\n\n<\/div>\n\n\n<div class=\"c-bookmark-card o-grid  cursor\"  onclick=\"location.href='https:\/\/blog.christopherreeve.org\/en\/ems-spotlight-david-whalen'\" >\n    <div class=\"o-grid__col u-1\/3@md u-1\/2@sm c-bookmark-card__image\">\n    <img decoding=\"async\" src=\" https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2025\/06\/davidwhalenemsspotlight.png\" alt=\"\">\n    <\/div>\n    <div class=\"o-grid__col u-2\/3@md u-1\/2@sm c-bookmark-card__text\">\n    <a class=\"c-button c-button--text c-button--capitalize c-button--padding-left-0\" href=\"https:\/\/blog.christopherreeve.org\/en\/ems-spotlight-david-whalen\">EMS Spotlight: David Whalen<\/a>\n    <p>\u201cDisability Awareness Training for First Responders\u201d is among the spotlighted resources in the National Paralysis Resource Center\u2019s new collection for EMS professionals. <\/p>\n    <\/div>\n<\/div>\n\n\n<div class=\"c-bookmark-card o-grid  cursor\"  onclick=\"location.href='https:\/\/blog.christopherreeve.org\/en\/ems-spotlight-katherine-koch'\" >\n    \n    <div class=\"o-grid__col u-2\/3@md u-1\/2@sm c-bookmark-card__text\">\n    <a class=\"c-button c-button--text c-button--capitalize c-button--padding-left-0\" href=\"https:\/\/blog.christopherreeve.org\/en\/ems-spotlight-katherine-koch\">EMS Spotlight: Katherine Koch<\/a>\n    <p>When Koch learned about autonomic dysreflexia, a potentially life-threatening case of acute hypertension experienced by many people living with spinal cord injury, she was shocked that it was not part of her EMS training.<\/p>\n    <\/div>\n\n    <div class=\"o-grid__col u-1\/3@md u-1\/2@sm c-bookmark-card__image\">\n    <img decoding=\"async\" src=\" https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2025\/06\/katherinekochemsspotlight.png\" alt=\"\">\n    <\/div>\n    \n<\/div>\n\n<\/div>\n<\/section><\/div><\/div>\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\"><section class=\" white\">\n    <div class=\"o-container \">\n\n\n<h2 class=\"wp-block-heading\">Access<\/h2>\n\n\n\n<p>Access is a critical aspect of care. It is important for providers to assess the challenges people living with paralysis may encounter when they arrive at your office. Is there an easily accessible entrance that is free of stairs or raised thresholds? Does your waiting room provide space for a wheelchair to maneuver? Many people with paralysis report that they haven\u2019t been able to weigh themselves due to lack of an accessible scale both at home and at their doctor\u2019s office. Others report that they can\u2019t get in the front door or transfer safely to an accessible exam table. These experiences can discourage preventative check-ups and adversely affect long term health.<\/p>\n\n\n\n<p>To help improve your office\u2019s accessibility, please review <a target=\"_blank\" href=\"https:\/\/adata.org\/factsheet\/accessible-health-care\" rel=\"noopener\">these resources<\/a> from the ADA National Network.<\/p>\n\n\n\n<div class=\"c-bookmark-card o-grid  cursor\"  onclick=\"location.href='\/todays-care\/living-with-paralysis\/free-resources-and-downloads\/paralysis-resource-guide\/'\" >\n    <div class=\"o-grid__col u-1\/3@md u-1\/2@sm c-bookmark-card__image\">\n    <img decoding=\"async\" src=\" https:\/\/www.christopherreeve.org\/wp-content\/uploads\/2024\/06\/PRGBookMarkComponent.png\" alt=\"\">\n    <\/div>\n    <div class=\"o-grid__col u-2\/3@md u-1\/2@sm c-bookmark-card__text\">\n    <a class=\"c-button c-button--text c-button--capitalize c-button--padding-left-0\" href=\"\/todays-care\/living-with-paralysis\/free-resources-and-downloads\/paralysis-resource-guide\/\">Paralysis Resource Guide<\/a>\n    <p>Our Paralysis Resource Guide has an interview with disability advocate Cody Unser on navigating the OBGYN\u2019s office from a wheelchair user\u2019s perspective.<\/p>\n    <\/div>\n<\/div>\n\n<\/div>\n<\/section><\/div><\/div>\n\n\n<section class=\"bg--light-grey\">\n    <div class=\"o-container\">\n        \n       \n        <p class=\"u-text--disclaimer\">The National Paralysis Resource Center website is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $10,000,000 with 100 percent funding by ACL\/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, ACL\/HHS, or the U.S. Government.<\/p>  \n    <\/div>\n<\/section>","protected":false},"excerpt":{"rendered":"<p>Nurse Linda Linda Schultz, Ph.D., CRRN, &#8220;Nurse Linda&#8221;, a rehabilitation nurse who works with the Reeve Foundation to educate families about paralysis, has written a series of seven blogs about pediatric spinal cord injury that can help providers treat younger patients. Emergency Medical Services and People with Paralysis Access Access is a critical aspect of [&hellip;]<\/p>\n","protected":false},"author":8,"featured_media":13688,"parent":459,"menu_order":5,"comment_status":"closed","ping_status":"closed","template":"templates\/gutenberg.php","meta":{"_acf_changed":false,"footnotes":""},"category":[],"class_list":["post-12517","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.3 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Resources for Healthcare Professionals - Christopher &amp; Dana Reeve Foundation<\/title>\n<meta name=\"description\" content=\"Paralysis affects families in every community across the country. 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